kippitmoving.com
  • Home
  • About
  • Life
  • Exercise
  • #imnotdeadyet
  • Medical
  • Reviews/Gear
  • Support
Life, Medical 1

Cure Us PDX

By Kipp @1tonkippo · On February 24, 2015

Shortly after releasing my blog attack on you all, a few members of FARA (The Friedreich’s Ataxia Research Alliance) reached out to me after reading my first barrage of tweets.  As I’ve shared in a few posts (primarily in the post “You are now clear, to hold.“), I have ataxia, like Friedreich’s Ataxia, but not quite Friedreich’s Ataxia.  After further research and networking, this feels like a fitting community to really throw my support behind.

Turns out, they are putting on a fundraising event in Portland, Saturday night, March 7th, the Cure Us Dinner and Auction at the McMenamins Crystal Ballroom.  With Greta and I trying to make it to RideAtaxia NorCal, we decided that while we would like to go to this upcoming CureUsPDX event, we really couldn’t afford attending.  This weekend I woke up to a message on the ever present Facebook, from Michelle, the organizer of the event, asking if we would like to and could go, and that they had two tickets available to sponsor our attendance!

Speechless, that is all.  Greta and I are excited to attend this event, supporting, what I see, to be a very good organization.  We all have financial obligations, so please don’t over-extend yourself, but if you have been looking for a worthy charity, I think this is extremely worthwhile, the registration for this specific event closes Monday, March 2 (next week!), so you’ll have to hurry to catch this one.

Hopefully in the next week or two we’ll be able to finalize a couple budget items and open up a portal for our road trip to RideAtaxia NorCal, May 30th!

Stay tuned, and thank you all, for your support, of every kind.

kippitmoving.com

cureforakipp.com

Tweet
#cureforakippataxiacharitycurefaFARAFriedreich’s Ataxiarideataxia
Share Tweet

Kipp

You Might Also Like

  • Life

    Do not go gentle into that good night.

  • Exercise

    Control

  • Exercise

    Control – Swanson studio has heart – BTS

1 Comment

  • CureUs - Family - kippitmoving.comkippitmoving.com says: March 9, 2015 at 3:13 pm

    […] course of spamming you all with my rambling, Greta and I were given the opportunity to attend the Cure Us PDX event this weekend (exactly a month after I started writing, timing is everything), benefiting […]

    Reply
  • Leave a reply Cancel reply

    Athletic Development Fund

    Tax deductible support via Kipp's Athletic Development fund:

    Categories

    • Camping (2)
    • Entertainment (3)
    • Exercise (54)
    • Life (49)
    • Medical (27)
    • Reviews/Gear (13)
    • Travel (2)

    Strava Profile

    Follow me on Strava

    #imnotdeadyet

    Activities

    WP Strava ERROR 401 Unauthorized - See full error by adding
    define( 'WPSTRAVA_DEBUG', true );
    to wp-config.php

    Control

    https://youtu.be/tLacel-_-BU

    instagram

    Load More...Follow on Instagram
    • #imnotdeadyet
    • About
    • Contact
    • Disclaimer
    • Online Store
    • Privacy-Policy
    • Support

    Latest Reviews

    • 9.5

      The right shoes, an invaluable addition.

      February 2, 2015
    • 9.5

      iPhone riding: Quad Lock Case Review

      March 11, 2015
    • 9

      Keep rolling, this weather shall pass.

      February 9, 2015
    • 7

      Honey Stinger Gold Energy Gel Review

      February 19, 2015
    • 3

      iPhone riding: Biologic Case Review

      March 11, 2015

    I recommend

    • #GetSome Elite Gaming
    • Adaptive Sports Northwest
    • Bentrider Online
    • Big Lake Youth Camp
    • Catrike Official Website
    • Challenged Athletes Foundation
    • Invacare Top End
    • ParaSport Spokane
    • Pass The SEO
    • RecumbentPDX
    • Rose City Recumbent Cycles
    • SideStix
    • Snow Consulting
    • TerraCycle
    • TiLite – The Ultimate Ride
    • World Wheelchair Sports

    Athletic Development Fund

    Tax deductible support via Kipp's Athletic Development fund:

    Amazon

    ©2015 KippItMoving.com All rights reserved.